Links

I’ve searched the Web and tried to provide a list of the most relevant and well-produced or most helpful sites on molar pregnancy, choriocarcinoma, and gestational trophoblastic disease. However, you may find that the information on many of these sites is redundant; most sites offer only the basic descriptions of the conditions and maybe a few references. Others may be too technical or graphic, providing detailed information in medical jargon that the average lay person may not comprehend. However, I hope that somewhere among these links you find the information or support that you are looking for.

If you have a link to recommend, please email me at mymolarpregnancy@gmail.com with the URL, title, and a brief description of the site. I am ONLY accepting links to sites related to molar pregnancy, choriocarcinoma, and miscarriage. Solicitation emails for sites on any other unrelated subjects will not be answered. If one of my links is broken, please email me and let me know so I can keep this page current.

You can also find MyMolarPregnancy.com on Facebook!

I was interviewed in 2017 by Pregnancy Loss Journey for their podcast to discuss molar pregnancy. I talked about the different forms of the condition and the treatments as well as my personal experience. We also touched on choriocarcinoma as well as the question some women with molar pregnancy are most conflicted about: Was it a baby? The podcast website has disappeared and the iTunes and Stitcher app files don’t seem to be working; I am trying to find out what happened and, if possible, get a copy of the interview for the website. Please stay tuned.

In January 2018 support group member Kelly Stocker was interviewed on BBC Sussex Radio about her complete molar pregnancy experience and about a fundraising bicycle ride she and a friend signed up to do to support The Cancer Treatment and Research Trust at Charing Cross Hospital in May 2018. I support everyone’s efforts to speak out about molar pregnancy and to raise funds for the cause; both Charing Cross in the UK and the Dana Farber Cancer Center in the US are excellent places to help support. If you’re interested in hearing Kelly’s interview, she’s posted it on YouTube at this link.

Tara Johnson and Meredith Schwartz, authors of Gestational Trophoblastic Neoplasia: A Guide for Women Dealing with Tumors of the Placenta such as Choriocarcinoma, Molar Pregnancy and Other Forms of GTN (©2007), discuss gestational trophoblastic neoplasia on the radio show Choriocarcinoma and GTN here (Note: This link may play in your browser or may ask to download the MP3 file to your computer, depending on your settings.)

American Cancer Society: Gestational Trophoblastic Disease

American Pregnancy Association: Molar Pregnancy

BabyCenter: Molar Pregnancy

Charing Cross Hospital Trophoblastic Disease Service

Dana Farber Cancer Institute: About Gestational Trophoblastic Disease

Feedback: A Pro-life Doctor’s View on Molar Pregnancies

Foundation for Women’s Cancer: Gestational Trophoblastic Disease

Gestational Trophoblastic Neoplasia

Grief Loss & Recovery

HAND: Helping After Neonatal Death

HopeXchange

Hope After Loss