Welcome to MyMolarPregnancy.com. If you’ve come to this site because you have had or are currently being treated for this condition, I’m very sorry for your loss. If you’ve come in out of curiosity, I hope you will leave with a better awareness of the existence and impact of molar pregnancy, particularly if you are a woman of childbearing age. If you know someone who has had a miscarriage diagnosed as a molar pregnancy, I urge you to refer them to this site for information and support.
I’m sure that you have a lot of questions. What is a molar pregnancy? What does this mean for me? How long will I have to wait before I can conceive again? What is the usual treatment? You’re also probably hearing a lot of new and/or scary terms such as gestational trophoblastic neoplasia, hydatidiform mole, beta hcg, D&C, cancer, chemotherapy, or choriocarcinoma.
MyMolarPregnancy.com is unique among molar pregnancy sites on the web because here I try to incorporate information, links, references, and a number of interactive web features for women who have lost a pregnancy due to a hydatidiform mole. I had a complete molar pregnancy in 2001, so I know a little about what you’re going through. You may be confused, hurting, stressed, angry, numb…but everything you are feeling now, whatever it is, is normal. Here on the site you’ll find stories from other women who have been through many different versions of this same condition. On the “Overview” page you’ll find medical explanations from Drs. Goldstein and Berkowitz of the New England Trophoblastic Disease Center, considered some of the top experts in this area in the United States. In my very active Facebook support groups you’ll find hundreds of women who are or have been going through the same things you’re experiencing now, and they are there to help.
Here’s a short explanation about molar pregnancy. For more, see our “Information” pages in the menu above. Please, take the time to look around, get acquainted with the site and the many features here to support you. Join the support group if you feel up to it. I, and all of my group members, are here to help.
WHAT IS A MOLAR PREGNANCY, OR GESTATIONAL TROPHOBLASTIC DISEASE?
Here is a synopsis from the Dana-Farber Cancer Institute:
“Gestational trophoblastic tumor, a rare cancer in women, is a disease in which cancer (malignant) cells grow in the tissues that are formed following conception (the joining of sperm and egg). Gestational trophoblastic tumors start inside the uterus, the hollow, muscular, pear-shaped organ where a baby grows. This type of cancer occurs in women during the years when they are able to have children. There are two types of gestational trophoblastic tumors: hydatidiform mole and choriocarcinoma.
If a patient has a hydatidiform mole (also called a molar pregnancy), the sperm and egg cells have joined without the development of a baby in the uterus. Instead, the tissue that is formed resembles grape-like cysts. Hydatidiform mole does not spread outside of the uterus to other parts of the body.
If a patient has a choriocarcinoma, the tumor may have started from a hydatidiform mole or from tissue that remains in the uterus following an abortion or delivery of a baby. Choriocarcinoma can spread from the uterus to other parts of the body. A very rare type of gestational trophoblastic tumor starts in the uterus where the placenta was attached. This type of cancer is called placental-site trophoblastic disease.”
As mentioned, my Overview page has more detailed information. There is also a Glossary page of common terms and a Links page to find additional sites that may help. It is my hope that this site will continue to grow as the most complete resource for those dealing with this type of loss. You can help! Here’s how:
- Join and participate in our support groups on Facebook, linked in the menu above, where women of all ages and from all around the world gather to talk about their experiences, thoughts, feelings, concerns, and questions about their molar pregnancies and life after a mole…
- Contribute your molar pregnancy story to our Personal Stories collection…
- Leave comments around the site (no spamming please) to let us know you were here, whether you’ve had a molar pregnancy and needed information or were just browsing through…
- Visit our Profile Survey page to see common factors among women who’ve had molar pregnancies…
- Tell your doctors, your nurses, your midwives, your doulas—anyone in the obstetric/childbirth field—as well as your friends, your family, your loved ones, and anyone you know who has had a molar pregnancy about MyMolarPregnancy.com so that others can take advantage of all this site has to offer.
Whether you’ve had a molar pregnancy yourself, know someone who has, or just surfed into this site out of curiosity, your visit here can help. By learning more about molar pregnancy and helping to spread the word, you can help raise awareness of the condition. Who knows? With increased attention, perhaps someday we’ll find a reason for molar pregnancy and a way to prevent it from ever happening again.